Naaman's Journal

Naaman has to lay flat for 30 minutes after the LP to avoid a headache. Answered prayers from Naaman’s LP last Thursday: all labs show there are no cancer cells in the spinal fluid. Amen! Initially, they saw WBC (white blood cells) in the sample again, but we waited until they sent for additional testing before posting here. We hoped for better results and we got them. The WBC must mean he has a cold

In case you missed it, Naaman and Resilience Gives were featured on News 8 last Wednesday!  Here is a link to watch: News 8 Naaman loved the interview and talked their ears off.  Thanks to everyone who tuned in, sent us messages and/or shared the story on social media! We ♥ Team Naaman! Another LP attempt tomorrow. So far his COVID test was negative and we are on schedule with his LP tomorrow (Thursday).  He has

Naaman was supposed to have another LP Wednesday to check up on some elevated WBC in his last LP –  but it was postponed until next month. He had a negative COVID test but he had diarrhea and a cough, and wasn’t worth the risk of sedation, given all of his respiratory issues.  He usually needs oxygen and has had some adverse respiratory events while sedated, so the risk of sedation for the LP did

Happy Chanuka, friends! We just made some yummy latkes in honor of our friends celebrating this week. How do you prefer your latkes? Nadine prefers applesauce, Neil likes sour cream, Nicole likes any topping, and Naaman only eats potatoes shaped like dinosaurs from Aldi. Unexpectedly… Next Thursday Naaman will need another LP, which was not planned. The last LP showed increased white blood cells in his spinal fluid.  We aren’t sure why, but hope it’s

It’s the most wonderful time of year again. We feel so blessed for a healthier December, and hopefully it stays that way. Naaman has a funny trick of spiking a fever to hang in the hospital and get discharged Christmas Eve. Praying to not repeat that for the third year in the row. Cheeky and Deanie Many of you reading this are in need of support this year, and many of you reading this are

Naaman did a great job at clinic today. He made counts and was well enough to have his LP and chemo.  This makes Day 1 of Cycle 7, still rolling until November 2021. He needs oxygen every LP, but otherwise has done well breathing on his own when he is sedated. And guess what dropped today?! Naaman dropped off a BIG box of super cute, cozy grippy socks from Resilience Gives. You’ll have to wait

Mary and Peter Parker Hope you had a fun, safe Halloween! Mary (and Baby Jesus) and Spider-Man stayed close to home but had lots of candy and treats – thanks to friends and family. We have colds running through our house again, but are otherwise healthy and avoiding surprises. Be well, Team Naaman!

Naaman had a long, but successful day in clinic yesterday. Clowns, animal cookies, socially-distanced friends, and new Spiderman Jammies. He started back up steroids and the clinical trial drug, and every cycle has a surprise effect on him. So far it seems this round is sleepy and destructive by day, awake and wild by night. Flu shots are out, so get yours! Naaman got his yesterday, too, and thanks to this cute little tool the