He made it!
Naaman started kindergarten. He loves the bus, school lunch, his classmates, and his teacher, Mr. Meredith (who also had Nadine three years ago). He is so motivated to learn and make friends. We are so proud of him!
We are especially glad he was able to start the year with no NG tube and no Broviac IV. That’s right: he worked so hard to get both of them out before the first day of school! We still can’t believe it. He will need a plan in place to keep him healthy but it’s refreshing not to need special arrangements to keep those lines safe at school.
Naaman still needs immunotherapy for the rest of his life, still has weekly PT/OT, and still has monthly bloodwork at Yale and follow up at CHOP every three months (for now). But starting school on time is huge milestone for him and we are so happy.