No major updates yet on transplant. Naaman has been busy playing and cramming in as much fun as he can. Legos, playdough, hikes, playing outside… he even baked some bread! (And ate a little, too.) It’s been really temperate weather so we have been very lucky to be out in public more outdoors.
We are awaiting a consult with Children’s Hospital of Philadelphia (CHOP) for the humanized CAR-T. In general, Naaman is a candidate, since the first CAR-T failed. We don’t have any other information yet. Hopefully, we’ll have a virtual meeting soon to get more information. For now, admission for a BMT is still on the calendar for the week of November 15. The week prior, he would have radiation as outpatient, too.
Please keep praying for Naaman to stay well before his next treatment, whatever that may be!
4 thoughts on “Just hanging out for now”
The “light reading” photo gets me everytime lol. Hope y’all are able to relax a little bit ahead of transplant.
It is so good to see him having fun and reading… thanks for sharing the photos! Praying for you all and especially for Naaman and God’s direction for his next procedure ❤️
Thank you for this update. I can’t believe how big Naaman is – a real boy, not a toddler anymore. We are always praying for all the best for everyone. Love and miss you.
He is always at the top of my prayer list.
Love,
Joanne