September 2021

Bone Marrow Transplant

 We didn’t quite make it to the three month marker for CAR-T. Naaman has not relapsed but his B cells are rising which means the team wants to move to a bone marrow transplant. His B cells needed to be zero, as increasing B cells suggests the T cells aren’t working. The B cells went […]

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Hello, Team Naaman. Football season is upon us and we hope you’re ready. Naaman can’t wait to watch “Josh Allen the superhero” and Tom Brady play for “the pirates.”   IVIG today… Naaman had therapy and clinic today. A typical clinic visit consists of a Broviac IV dressing change, cap change for the IV lines,

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Clinic update

Quick updates! Naaman had some ultrasounds done today to check on his liver. He will see the clotting specialist next week – fingers crossed we can stop his heparin injections for the clots he had after relapse chemo. Naaman also had his regular check at clinic. Immunoglobulins are down (expected) so he will has those

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