Cheeky has been out and about as much as possible, soaking up fresh air before his big admission this Thursday. His collected cells are growing great at Novartis and will arrive at Yale New Haven Thursday. He will get some meds and hang for a few days, and will start infusion of the T-cells on Monday 7/19.
Naaman still isn’t eating and fine motor skills are super delayed, but he can walk now. He’s a pretty sweet dancer, too. We are hoping he feels well enough while he’s in the hospital to keep up PT and OT. During his eight week admission when he relapsed, Naaman was so sick that he stopped eating and walking and lost skills.
Thursday admission. Monday infusion. At least a few weeks inpatient to monitor for side effects. The side effects can be intense and severe, so Naaman needs to be closely watched. Kymriah, the CAR-T treatment, may cause scary things like excessively high fever or neurological effects, and his immune system is wiped out. Read more here.