CAR-T Collection is delayed, since Naaman didn’t make counts. His absolute lymphocyte count is still too low. There isn’t anything to do besides wait for it to increase. They will check his labs again this week and see where he is. Hopefully, he will be rescheduled for the week of 6/7, just maybe not on …
Sunday afternoon our expert crawler slipped and fractured his left wrist! He has a brace which he’s learning to deal with. Instead of crawling now he sort of shuffles along on his knees and – yay – standing up a little. Thank goodness he is a righty! He has a follow up with the ortho …
As we suspected, Naaman’s collection for CAR-T was found to be contaminated and can’t be used. Refresher: he tested for staph (MSSA) the same day as collection, which prompted the port removal and surgery for an external Broviac central line. What does that mean? We start over! Naaman will be admitted 5/31 (Memorial Day) to …
Naaman is getting a new port tomorrow. He had an internal port, which was just removed due to infection. The internal port required a needle access each time it was used, and also was a single lumen, meaning just one line of meds/fluid/chemo could go in at one time. Now that we’re high-rollers in relapse, …
Surprise surgery this afternoon. Naaman had to have his port removed and is using two IVs (one in each hand) for now. Naaman’s infection turned out to be a staph infection (MSSA) which he’s had quite recently before. Unfortunately the infection lingered in his port which can happen sometimes with those super bug-type infections, even …
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