Three days inpatient and CAR-T collection is done. Naaman’s numbers were lower than they wanted by Monday, but the team felt proceeding with collection was more important than the risk of waiting. As predicted, Monday he had surgery to put the big line in and Tuesday and Wednesday were collection days.Naaman couldn’t move much with …
CAR-T collection complete but back in the hospital Read More »
Naaman made counts and is slated to begin CAR-T cell therapy Monday! We won’t go to great lengths explaining CAR-T cell here, but this is an excellent resource: NIH CAR-T cell therapy engineers the patient’s immune cells to fight their own cancer. T-cells from Naaman are collected, taken to a lab in New Jersey called Novartis, …
Tough transition home We were excited to come home the day after Easter, albeit with lots of homework to do. Between the injections, IV meds, and feeding pump – not to mention that Naaman can’t walk or stand – it was slated to be tough but doable. Plus, Nadine and Naaman were just so happy …
Cuter than any droid I’ve met Happy Passover and Happy Easter! Naaman will spend Easter at Smilow, but that won’t stop him from partying down. His counts have been trending up and that means he is more in the mood to go for walks in the stroller and play Legos and craft. It also means …
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