Month: July 2019

Good check-up today

Cheeky went to clinic today for a blood draw and “check-up.” His counts look great and no new symptoms have popped up.  We are all very pleased to be outpatient and getting to play with other kids and be out-and-about. He’s been pretty booked for playdates and birthday parties! Our focus right now is on …

Good check-up today Read More »

Maintaining in maintenance

Hi, Team Naaman. Our little Cheeky is chugging along maintenance. No ER visits since that pulled NG tube on 7/3.  We have been busy with appointments (more on those) and a hefty load of home chemo, not to mention he still needs continuous feeds. Nonetheless, we feel weird not having been to Smilow this week.  …

Maintaining in maintenance Read More »

Maintenance begins

Cheeky has made it to the maintenance phase, which is cause for celebration as a lot of the high-dose “heavy-duty” meds are behind him. Hooray! Nonetheless, he still has a long road ahead of him. Two or three more years still ahead.  He starts a new regimen of chemo with maintenance, although nothing he hasn’t …

Maintenance begins Read More »