June 2019

Softball Tourney

Congrats to Softball Jamboree winners, “Chickson,” and to everyone who came out. Pictured here are the first and second place winners. Big shout and thanks to Al Lavigne for organizing, despite weather obstacles! A special thanks to our pastor, Will Marotti, for use of the fields at our gorgeous New Life Church campus.  Team Naaman […]

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Change to chemo plan

Hello, Team Naaman. Cheeky is on the mend from his stomach virus. All of the cultures for more serious issues (i.e. malabsorption, C-diff) have come back negative, and he has been fever free.  He is still struggle with his tube feeds, and we are on a new plan to get him to tolerate them.  It’s

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Home and making new plans

Naaman got to come home this morning from the hospital, which is great. It is no picnic, however, as we are still having feeding issues, NG tube dressing, diarrhea, and pain management. We also have to go to clinic tomorrow morning. Please pray for patience and frustration tolerance in our house!

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Fun times for Cheeky

Lots of ups and downs for Cheeky, but when he isn’t so nauseous or in pain, he is on the move.  He wants to run faster than his feet can keep up! Hiking in the back carrier (we have a super comfy Kinderpack carrier), riding in the bike trailer, playing in the yard, running around

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