Month: April 2019

Heading into week seven…

Cheeky still needs enough care that the safest place to be is here at Smilow. We had hoped he would be well enough to start chemo last Thursday and be done with the liver meds, but alas, here we are. His bilirubin went up (insignificantly) which is keeping him on the meds to be sure …

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The Healing Garden

With the exception of icy days where the path was blocked by snow or was too slippery, our hospital stays have been made brighter by visiting the Healing Garden which is on our floor at Smilow.  It’s available for patients and visitors for in and outpatient to come get fresh air, pray, cry, whatever one …

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Happy Easter!

Happy Easter weekend, Team Naaman! Naaman is slowly but surely heading in the right direction. Liver levels continue to improve, he has been needing oxygen infrequently, and belly is starting to go down. His belly had swelled as large as it was at the onset of his liver disease, but it was due to gas …

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Update from “Smile” Cancer Hospital

As Nadine adorably calls it, “Smile” Cancer Hospital (Smilow). Too cute to correct. Mr. Naaman has busy days, filled with therapy, naps, and medicine, squeezing in play and books whenever he has the energy.  He has respiratory therapy to help his breathing (soft banging on his chest with a cup basically), occupational therapy, and physical …

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The “Healthy” Kid in the PICU

There he is: the “healthy” kid in the PICU. In a rare moment of engagement, he saw his Captain American mask and motioned for me to put it on him.  He is trialing no oxygen, has just five lines in him, still in the thick of liver disease, and withdrawal from sedation… believe it or …

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