To relieve some fluid around his lungs, Naaman has a drain put in on the right side of his chest. The fluid puts a strain on his lungs, kidneys, liver – everything – so getting the excess out should help him heal. Overnight a fleeting fever, and another today when he got platelets. It’s not …
We always knew that when we had a baby boy, we would name him “Naaman.” Where the heck did we get this name that sounds made up and has an awful lot of ‘As’ in it?? When we chose this name, it was intentional because of its meaning, but we certainly underestimated what a conversation-starter …
Hello, Team Naaman. Our family is grateful for the prayers and support that has poured out this past week especially. He is one loved little guy. He still struggling to find the balance of fluids to help him heal. It feels like one minute up and one minute down, but his liver doctor just came …
We will continue to post daily updates as best we can during these critical times for Cheeky so that family and friends can help support our favorite little Hulk. Today he wasn’t nearly as restless as the day prior, when he was chomping down on his breathing tube. His ammonia levels, while elevated are still …
Naaman is resting and healing up in the PICU. You can see in the photo his trusty penguin is by his side. He has his Disney stuffies all around him and artwork from Nadine hanging on the walls. A full photo is a little overwhelming to see, as he currently has many lines hooked up, …
Naaman went to clinic Thursday for more platelets; however they decided to admit him because he shouldn’t need platelets that many days in a row (Sunday-Thursday). After one sleepless, long night, he wasn’t eating or drinking and his belly had become huge and hard. We got switched over to the PICU (pediatric intensive care unit) …
Cheeky recently had a drug (cytarabine) that sweeps out all of his platelets so they keep dropping like crazy. He’s had transfusions Sunday, Monday, and again today, with scheduled Wednesday (and probably Thursday) transfusions, too. What was nice is that his doctor gave us the choice of being admitted, since he will most likely be …
Cheeky was supposed to have today off, since he just had transfusions yesterday at the hospital. However, he had rashes of tiny red dots (called petechiae), clumps of blood coming out of his nose, and a trace of blood in his diaper. Needless to say, we went into clinic and his platelets were even lower than …
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