We hope everyone got their turkey on and had a delicious, fun celebration. Happy Thanksgiving!
Fortunately, we got our delicious dinner and had some fun with family before Naaman had to go to the ER for some fluids and sugars. He ate nothing (as in not a single morsel of food ingested except a 1/4 cm piece of turkey, if you count that at all) today and seldom drank. He also wasn’t producing diapers, and has been very sleepy. We were hoping he just needed some fluids and by the grace of God, he got fluids and dextrose and is asleep back in his own crib tonight.
If Naaman can at least keep up fluid intake and get through the yuckiness of this part of chemo, we can avoid tube feedings. At the ER tonight he was down to 9.8 kg from 10.3 kg on Monday (1 kg=2.2 lbs, therefore it’s about a pound lost). He refuses food altogether, or chews it and spits it out in a secret location around the house, or worse he vomits it up. Tube feedings aren’t uncommon in children with cancer, and won’t be the end of the world, as they will likely be overnight while he’s asleep at home. Nonetheless, we would of course prefer he eats a regular diet by mouth and can get that NG tube soon! We will revisit this topic with the doctor when we go to clinic next Monday. Currently, he has the NG tube just for meds and we aren’t sure how long it will stay. NG tubes are meant to be temporary but sometimes “temporary” is longer than a week or two. For more info, click here: what is an NG tube?
Enjoy your weekend, friends and family, and we hope you are not out shopping. 😉