Month: September 2018

Back home from the ICU again

We were a little late with an update after Naaman’s latest ICU visit but we wanted to let everyone know that Naaman is ok. His cold is still hanging on but not nearly as bad as it was lats week.  We were discharged from the ICU on Saturday morning after a 2 day visit. Nicole …

Back home from the ICU again Read More »

Croup cough strikes Naaman

Today became another sober reminder at just how touch and go things can be and how things can change very quickly.

Yesterday we were celebrating Naaman having completed the first 14 day cycle of his clinical trial drug giving us a 14 day window with no clinical trial drugs. Today things went completely different.

Pirate Booty and Sesame!

Naaman went to clinic this morning for a blood draw. His levels went down, as is expected during chemo, but he didn’t need a blood transfusion or platelets today. He will however need both by Thursday. That means Thursday will be transfusion, platelets, lumbar puncture and chemo. Long day! In the meantime, he is moody …

Pirate Booty and Sesame! Read More »

Clinic Day for Naaman

Cheeky survived clinic today and I didn’t get bit. Win win! It’s been particularly busy in clinic, which makes me feel sad that so many kids need appointments.  Needless to say, our 8:30 blood draw for 9:00 lumbar puncture became 9:30 blood draw and 10:45 lumbar puncture. He was a hangry man but we kept …

Clinic Day for Naaman Read More »

Rocky the pug’s new home

After tons of deliberation and tears, Rocky is going to a new home this afternoon. We decided to contact New England Pug Rescue (weirdly specific but yes they are real) and they helped us place him. They have been compassionate, kind and helpful through the whole process. We can’t know exactly where Rocky will be, …

Rocky the pug’s new home Read More »