Month: August 2018

All roads lead to Thursday

Naaman had a fairly uneventful day today, thankfully. He had a couple antibiotic treatments and had to have his port tube replaced. Apparently every 7 days this has to be done so guess it is telling us how long we’ve been in the hospital.  While he was pretty agreeable most of the day, sleeping well …

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Donate blood and stem cells

Donate blood! If you are able, please do so. We now see first hand how badly blood is needed, and that would be an easy (ish) way to save a life. Some friends and family have asked about bone marrow donors. While We thankfully do not need a bone marrow transplant right now, and the …

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Charming the ladies

Cheeky is making the best of his visit to by charming the female staff into extra goodies, toys, music therapy and playtime. Winky faces and high fives go a long way! He had antibiotics, platelets and fluids today, hoping to get his levels back up. THANK YOU THANK YOU for the cards, gifts, and many …

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And we’re back!

The little guy seemed okay after chemo Thursday, but was very lethargic Friday and developed a fever by afternoon. We had to swoop down to the ER, which will always be the course when he gets a fever, and he was admitted to pediatric oncology again. Same great staff, better room. The good news is …

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Levels down

Cheeky had chemo today, and they found his hemoglobin, platelets and other levels were down, meaning he’s at risk for infection right now. He had his treatment and platelets and is sleeping through a blood transfusion right now. This will happen sometimes, and he will be okay, but it means lots of hand washing, he …

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Not the Cheeky I know

Sunday was a tough day for all of us. Just a couple months ago we were looking forward to lazy Summer Sundays or some of the smaller trips we had planned. That all seems so distant now. Today we were woken up in the middle of the night by Naaman crying and then screaming. Nothing …

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Sleepy at home

Cheeky is a sleepy guy, mostly wants to be held and snuggled. He plays a little bit with toys and likes to be around Nadine, but is not able to stand or walk (seems like it hurts). The good news is he takes his meds like a good boy and doesn’t spit them out. Also …

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