The little man was royally cranky after not being able to eat before MRI. Rightfully so! His counts were off again so he had hemoglobin and platelets. MRI went just fine, but no results yet. He was delighted to have some goldfish crackers and apple juice when he woke up. He also got some pretty …
Looks like tomorrow is definitely not discharge, as he needs an MRI, and also MRV and MRA which will look at his veins and arteries. His right ear is still mysteriously leaking and he’s developed a cough after drinking. Checking for any neuropathy caused by his chemo meds. Prayers that he’s all clear. We discovered …
Naaman had a nice night of sleep and woke up punchy just from medicines. Good news is his white blood cell count is still great and we were able to stop a medicine for uric acid (normal) and we are trying out no more IV fluids. Last night he was a bit dehydrated and needed …
Cheeky is doing well on Day 3 of treatment. His white blood cell count is so good that we can already start hoping for discharge. He’s a bit grouchy, which can be caused by the steroids, and clingy, which can be caused by bone pain. However, I think I’d be grouchy and clingy in his …
Today Cheeky was approved to move on from the ICU. Today was a no chemo day and instead a day of assessing the results from yesterday’s procedures to determine his path forward. Two major things happened today. Naaman was approved to have his groin and left hand IVs removed with the addition of the new …
Today was a pivotal day in Naaman’s journey. In the afternoon on Thursday Naaman underwent a series of procedures while under anesthesia. The first was surgery adding a port. The port essentially taps directly into an artery and is a circular shape directly under the skin near the clavicle. It doesn’t cause him any pain and …
Some details to bring you up to speed: We are at Yale Children’s Hospital, top ranked in CT and also top ranked for cancer. You may have heard of Smilow Cancer Center, but we will be over in the pediatric oncology. We are in the Pediatric ICU, likely for another day and then over to …
Cheeky went to the doctor Monday 7/23 for what seemed like an ear infection, as he was really grouchy and his ears had been leaking for a few days. The pediatrician noticed he had many bruises, and the bruises were hard lumps. When she tried to clean the discharge from his ears, it was a …
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